Having been diagnosed 17 years ago with multiple myeloma makes me a survivor, with an understanding that I am not cured of this disease. Yet, I am blessed to have experienced great progress since being diagnosed. From two chemo drugs, a stem cell transplant, and a few other therapies, so much has changed in the myeloma world. There are many more options for patients, both those who are newly diagnosed and those at relapse. One of the most important but challenging decisions is how to sequence these treatments. That is where the knowledge gained at ASH becomes valuable to the patient world. Being a first-time attendee at ASH, will make me feel like I am drinking from a fire hydrant. Information is coming at you fast and furious; but with the help of advocates from the International Myeloma Foundation, I will be a sponge and absorb information that will be beneficial to share with my support group in Memphis.
Having been in a trial for almost two years has shown me another side of my disease. The trial has taught me that no one is satisfied with existing treatment, but we are all truly looking for a better way of life and a cure for the patient. That is what makes ASH a true asset for those of us with a blood cancer.
As a person of faith, I have meditated many times on the scripture written by the Apostle Paul to the early church at Philippi: “Don’t worry about anything; instead, pray about everything; tell God your needs, and don’t forget to thank him for his answers.” Philippians 4:5